I recently set up a Facebook page for Gabriella in honor of who she is and in celebration of her 6 month milestone. The cover photo I chose was taken the day we were discharged from the NICU, January 24th, 2014. Which will be exactly 6 months home 2 days from now (which I just realized right now while typing this). That will be a day to celebrate! I was looking at the cover photo and for the first time realized that my husbands wrist band shows clearly in the picture. He has worn that purple band for years for our daughter that was diagnosed with juvenille generalized seizures when she was 9. She just turned 14 and will be seizure free for 2 years come September 3. I just love that this picture portrays Gabby and Johnna's fight. We could never have planned that, especially during that time with Gabby at the NICU. You can read HOPE clearly on the band. I just love that. My hubby isn't taking it off until Johnna is off of her medicine.
During the time Gabriella was in the NICU God used many people all over the country to pray for us. Family came close by. Help was there for our other 6 children at home which made it easier for John and I to get to the hospital each day. Our church became family to us. They came to Gabby's bedside and prayed with us, meals were planned, food was donated and friends made themselves available to us. Many of the nurses who cared for sweet baby Gabby were sincere and went out of their way for us to give us information or just to let us know they were there if we needed anything. I wish I could remember every nurse's name so I could thank them. From Gabriella's delivery to the Special Care Unit and then the NICU there were many hospital personnel that gave their all. God's hand was directing us even before we realized it. Looking back many things become so much clearer. Prayer continues to carry us as we care daily for little Gabby Grace. Thank you to all who join in praying for the healing of Gabby.
Below is a post that I shared today on FB. If the bracelets are still being sold buy one! If not there are other ways to help The Butterfly Fund by visiting their site.
Help this organization meet their goal! $9 only.Easy to order and shipping is included!
The Butterfly Fund...all proceeds go to children that suffer from many different health related needs. The RED bead is for EB children, white bead is for children who suffer with a disorder or disease that isn't linked to a specific color. The purple is for children with Epilepsy. I can't wait to receive our bracelets. Two of the beads stand for 2 of my children.
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