My Mommy went into labor 2 days before I finally was born. Mommy had a tough time convincing the doctors that I was ready. I came 3 weeks early on one of the coldest days, January 9th, 2014. It was later in the evening and Mommy & Daddy were very tired but from what I had heard from the inside was that they couldn't wait to hold me and see what I was going to look like. Mommy held me for a short moment and then I was whisked away and put under bright lights. I cried a lot and wanted to be warm and cozy with Mommy again. I guess something was troubling everyone because there was a lot of talking going on and concerned faces all around me. My new home was very warm and bright, not Mommy, but for the time being I knew I was safe. The angels caring for me (nurses) did their best to comfort me even though sometimes things hurt and my little body didn't want to cooperate. I learned something was wrong with my skin when they wrapped me up snug in white stuff. I could hear Daddy call me his little sock monkey. I couldn't be close to Mommy to eat, this was very hard on my Mommy. For the first 5 days this strange tube made my tummy feel better. I showed them though that I would eat from a bottle and I drank all that I could from it. Soon my comfy warm place was replaced with a big girl crib. I overheard that maybe soon I would get to go home and meet the rest of my family. Until then I loved hearing Daddy read me stories and Mommy would sing to me. They also talked to me all about my brothers and sisters and all the fun we would have all together when I got home. The best part was when Mommy & Daddy could finally hold me! The could hold me and feed me when every they could & I loved being so close to them. Feeling their touch made me a happy baby! The prayers being said around me helped me remain calm and at peace with whatever God had in mind. I could tell it meant a lot to my Mommy & Daddy too. I was told that people all over the country were praying for me. Guess I was pretty sick. Those prayers must have worked because my pain began to ease and I wasn't wrapped as much anymore. Mommy & Daddy came in one day kinda down thinking that another weekend was going to go by without me home. they were given the news that they could take me home! After 16 days in the hospital/NICU it was time to see the world! It wasn't easy being home but Mommy said everything was going to be just fine and that Jesus was making my boo-boos better. Mommy & Daddy prayed hard that the doctors would find out what it was I was suffering with. When I was 5 months old we got the news that my skin was going to need extra attention. A big name of Epidermolytic Ichthyosis was being defined all around me. Each day is a new beginning and for that I am thankful.
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